Preteen-Parent Experiences With PREP-T1 Feasibility Intervention
2015
Hughes, Patricia | Johnson, Kim | Ramchandani, Neesha | Quinn, Diane | D’Alesandro, Bianca | Streisand, Randi | Sullivan-Bolyai, Susan
The purpose of this article is to report the focus group perspectives of preteens’ and parents’ experiences with a feasibility intervention entitled PREP-T1 (Preteen Re-Education with Parents–Type 1 Diabetes), an interactive education and peer mentoring intervention. The parent and preteen focus groups were conducted by the principal investigator, coinvestigator, and note takers at 2 sites. The preteen-parent groups were conducted concurrently with a total of 11 preteens and 11 parents. Note-based qualitative content analysis was used, resulting in preteen-parent perspectives on reeducation and strategies for families to work more effectively in managing type 1 diabetes (T1DM). The findings suggest that the preteens enjoyed learning about their diabetes management from a teen educator mentor in conjunction with a human patient simulator. They reported this type of peer support would benefit other preteens with T1DM. Parents were overwhelmingly positive about their interactions with the parent educator mentor in conjunction with the psychologist and about focusing on how to better collaborate with their preteens on diabetes management decision making. Further recommendations about the timing and intervention dose were also discussed. Moderated peer mentoring with technology has potential as a means for teaching preteens and their parents shared diabetes management. These data will be used to inform the PREP-T1 fully powered intervention study.
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