Use of Remote Monitoring by E-mail for Long-Term Management of the Classic Ketogenic Diet
2020
Cinzia Ferraris | Monica Guglielmetti | Elisa Tamagni | Claudia Trentani | Valentina De Giorgis | Ludovica Pasca | Costanza Varesio | Ottavia Eleonora Ferraro | Anna Tagliabue
The classic ketogenic diet (cKD) requires constant nutritional monitoring over time both to ensure its effectiveness and to reduce the likelihood of short- and long-term adverse effects. We retrospectively described the use of remote monitoring by e-mail during the first year of follow-up on cKD in 34 children (47% males: age range: 2&minus:17 years) diagnosed with drug-resistant epilepsy (DRE: n = 14) or glucose transporter type 1 deficiency syndrome (GLUT1-DS: n = 20). All the e-mails were evaluated analyzing their frequency and content at 3, 6 and 12 months. Three families never sent e-mails. A median of 36.0 (IQR 23.0&ndash:64.0) e-mails per family were sent during the 12 follow-up months by the 31 patients. GLUT1-DS patients sent a greater number of e-mails than the DRE group (median 39.0 (IQR 25.5&ndash:56.5) vs. median 26.0 (IQR 19.0&ndash:65.0)). At the end of the follow-up period, a greater number of e-mails had been exchanged between the nutritional team and the families belonging to the group that increased its linear growth (median 83.5: IQR 48.0&ndash:102.0), compared to the other ones. Constant remote monitoring by e-mail could be a feasible and effective way for a better cKD management.
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